Review of Disability Studies: An International Journal
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That the drugs they claim are helping - helping him to survive Have really shut his mind down and are killing him alive
Do you think he chose this and composed his scary rants Or the scarring down his cheeks from endless acid tears Or could it be that he has been locked away for countless endless tears They might have been beaten - if lucky only raped If you're here celebrate cause you've escaped You have the power to destroy their ivory steeples You have the power to join in and FREE OUR PEOPLE CORRESPONDENCE Letters to the Editors and brief commentary are included in this section and can be addressed to Dr. Megan Conway, Associate Editor, Review of Disability Studies, Center on Disability Studies, 1776 University Avenue, UA 4-6, Honolulu, HI 96822, U.S.A. or emailed to submissions_rds@cds.hawaii.edu. ANNOUNCEMENTS 20th Annual Pacific Rim Conference on Disabilities: Promises to Keep, Futures to Seek March 29, 2004 - March 30, 2004 Honolulu, HI http://www.pacrim.hawaii.edu/ Since the first Pacific Rim (Pac Rim) Conference in 1985, the scope and size of this premier event has grown to include participants from the U.S. Mainland, Alaska, Pacific Islands Nations, Japan, Australia, the Philippines and numerous other countries. Persons with disabilities, family members, researchers, and service providers join policymakers and nationally recognized speakers in the field of disabilities to share resources for communities to fully accept and support persons with disabilities. This year's theme, "Promises to Keep, Futures to Seek", reflects on the promises and goals made and the opportunities created for persons with disabilities. Sponsored by the Center on Disability Studies at the University of Hawai'i in Manoa and various community partners. RDS INFORMATION
Why Advertise With RDS? The Review of Disability Studies is the ideal vehicle for reaching an international audience in the field of disability studies. We have and are pursuing affiliations with other major organizations in the field. Subscribers are academics, advocates, and libraries. It is a highly receptive audience for appropriately targeted advertising. Research shows that specialty journals such as the Review of Disability Studies are cited by professionals as the most useful source of information for the purchase of products and services, more so than conferences, direct mail, and direct sales. Copy Requirements and Cost Advertisements must be submitted in an electronic format - preferably a PDF file with fonts embedded or as a Microsoft Word file - in an email attachment sent to rds@cds.hawaii.edu. Dimensions for a half page are 7 x 4 inches at a cost of $300. Dimensions for a full page are 7 x 8 inches at a cost of $500. Discounts: 10% discount for 3, 4 or 5 insertions 20% discount for 6 or more insertions 10% publishers discount 10% discount for first time advertisers Please note: Only one type of discount will be applied to each booking. Combinations of discounts are not accepted. Copy Dates (subject to change) RDS is published four times a year and runs approximately 100 pages. Issue Published Date Copy Due 1 January December 1 of the previous year 2 April March 1 3 July June 1 4 October September 1 Terms And Conditions 1. All advertisements submitted are subject to editorial approval. We reserve the right to refuse or to remove advertisements at our discretion. 2. A confirmation of your order will be supplied upon acceptance. 3. We cannot make any guarantees as to publication dates. While we will make every effort to ensure that your advertisement will be published, the Review of Disability Studies may run ahead or behind schedule. 4. All advertisements are accepted on a space available basis. On rare occasions it may not be possible to accommodate a particular advertisement. Should this be the case, a refund or substitute issue will be offered. 5. No liability is accepted by the Center on Disability Studies or the University of Hawaii for the content of any advertisements or quality of any products, materials, or services advertised. 6. The Center on Disability Studies and the University of Hawaii do not accept any liability for loss or damage arising from the use of any products or materials purchased as a result of advertisement publication. 7. Invoices for all advertisements must be settled within 30 days of receipt from the date as postmarked. 8. All advertisement prices are subject to sales tax, general equity tax, value added tax, or any similar tax if chargeable and at the current rate. 9. Prices are correct at the time of publication. The Center on Disability Studies, at the University of Hawaii at Manoa, reserves the right to increase advertisement rates at any time.
Although core funding for the Center is provided by the Administration on Developmental Disabilities, other federal and state funds are provided by the Maternal and Child Health Bureau of the U.S. Department of Education, various other programs in the U.S. Department of Education, the University of Hawaii, and the State Planning Council on Developmental Disabilities. The activities of the Center for Disability Studies extend throughout the state of Hawaii, the mainland United States, and the Pacific region with funded projects in several initiative areas including intercultural relations and disability, mental health, special health needs, Pacific outreach, employment, and school and community inclusion. The Center provides a structure and process to support and maintain internal professional development, collegiality, and cooperation, reflecting an organizational commitment to excellence. Center activities reflect a commitment to best practice and interdisciplinary cooperation within an academic, community, and family context. Activities are culturally sensitive and demonstrate honor and respect for individual differences in behavior, attitudes, beliefs, and interpersonal styles. Subscriptions Information about subscriptions can be found on the inside cover of the journal. A subscription form is included at the back of the journal. REVIEW OF DISABILITY STUDIES SUBSCRIPTION FORM Please complete this form and mail with payment to the address below. Please enter a one-year subscription of the Review of Disability Studies for: Name: _________________________________ Address: _______________________________ _______________________________________ _______________________________________
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University of Hawaii at Manoa/CDS 1776 University Avenue, UA 4-6 Honolulu HI, 96822 Attention Subscriptions: Velina Sugiyama
The Review of Disability Studies: An International Journal Submission Guidelines The Review of Disability Studies is a peer-reviewed journal. The Review is published four times a year and runs approximately 100 pages an issue. Every article published in the Review is evaluated by an editor or evaluator. Upon request of an author and if appropriate, two anonymous peer reviewers will evaluate a submission and this will be noted upon publication. Scholarly and professional standards are expected from all authors. Essays, personal experience articles, reports, and other materials are also expected to meet quality standards. Contributors who are not subscribers are urged to subscribe. Authors who are non-subscribers will receive one printed copy of the issue in which their work appears. Submission of material will be considered evidence that you are offering the Review all publishing rights and the copyright. All written material must be submitted in an email attachment or on an IBM compatible diskette or CD-ROM in MS Word or text format to submissions_rds@cds.hawaii.edu or to the attention of Megan Conway, Review of Disability Studies, Center on Disability Studies, 1776 University Avenue, UA 4-6, Honolulu, HI 96822. If an author does not have access to a computer, two hard copies, double spaced with an explanation is acceptable. For more information, email or write to the address above, or phone: 808-956-5688, fax: 808-956-7878, web: www.rds.hawaii.edu. Format Requirements * While there is no page limitation on individual contributions, generally articles run from ten to fifteen single spaced pages or 5,000 to 7,500 words. Each submission must include an abstract of no more than 50 words, a three sentence biographical statement, and three key words. Please also indicate what degrees, professional credentials and affiliations are to be listed after the author's name(s). * Forum editors are responsible for obtaining and reviewing at least four articles on the forum topic or a total of 50 single spaced pages. It is recognized that some topics may require more pages. Forum articles must follow the guidelines for individual submissions. Each forum editor is also responsible for writing an introduction to the forum topic. * Do not use footnotes at the bottom of the page or any imbedded notes. All notes (if used) must be endnotes. References, endnotes, and acknowledgements will appear at the end of the article text. For citations, please use the most current guidelines set forth by the American Psychological Association (APA 5.0). * Gender specific pronouns should be avoided unless appropriate. Do not use contractions or slang unless it is in the original text as quoted. Corrections of grammar and syntax may occur during the editing process. Poetry will be published in the format in which it was submitted. * Work previously published must be so noted with a complete citation. If a copyright was obtained on the previously published work, written permission from the copyright holder must be submitted with the manuscript. Previously published work is not encouraged.
Endnotes
2 Sayrafiezadeh, Sa‹d. "My Mother and the Stranger," Open City. Number Seventeen (Summer 2003), 61. 3 Poirier, Mark Jude. "Happy Pills," Open City. Number Seventeen (Summer 2003), 42. 4 Poirier, Mark Jude. "Happy Pills," Open City. Number Seventeen (Summer 2003), 43. 5 Poirier, Mark Jude. "Happy Pills," Open City. Number Seventeen (Summer 2003), 45. 6 Poirier, Mark Jude. "Happy Pills," Open City. Number Seventeen (Summer 2003), 49. 7 Davis, Lennard J. Bending Over Backwards: Disability, Dismodernism, and Other Difficult Positions. (New York: New York University Press, 2002), 45. 8 qtd. in Ann Berthoff's The Making of Meaning. (Upper Montclair: Boynton/Cook Publishers, 1981), 110. 9 Berthoff, Ann. The Making of Meaning, 110. 10 Berthoff, Ann. The Making of Meaning, 35. 11 Thomson, Rosemary Garland. "Seeing the Disabled," The New Disability History. Ed. Paul K. Longmore and Lauri Umansky. (New York: New York University Press, 2001), 337. Endnotes
2 Ibid.
3 MacGugan, K. (1991). An interpretive history of the American disability rights movement, 1920-1990. Unpublished manuscript. Quoted in Brown, Investigating a Culture of Disability, 9. 4 Brown, Investigating a Culture of Disability, 12. 5 www.vsarts.org/gallery/exhibits/ disability/disabculture.html 6 www.disabilityhistory.org/dwa/edge/ curriculum/cult_contenta8.htm 7 http://www.amazon.com/exec/obidos/tg/listmania/list-browse/-/2HD21W4CPA64G/002-7131589-2403247 8 http://disabilities.temple.edu/programs/ds/culture.htm 9 http://www.english.upenn.edu/CFP/archive/Cultural-Historical/0117.html 10 www.dimenet.com/disculture 11 20-65. 12 Shapiro, Joseph P., No Pity: People with Disabilities Forging a New Civil Rights Movement (New York: Times Books, 1993). 13 Kleinfield, Sonny, The Hidden Minority: A Profile of Handicapped Americans (Boston: Atlantic Monthly Press, 1979). 14 Longmore, Paul K. and Lauri Umansky, eds., The New Disability History: American Perspectives (New York: NYU Press, 2001). 15 Longmore, Paul K., Why I Burned My Book and Other Essays on Disability (Philadelphia: Temple, 2003). 16 Brown, Steven E., Freedom of Movement: Independent Living History and Philosophy (Houston: ILRU, 2000; Available from 2323 S. Shepherd, Suite 1000, Houston, TX 77019, http://www.ilru.org). 17 Brown, Investigating a Culture of Disability, 76-78. 18 Gilson, Stephen French and Elizabeth DePoy, "Disability, Identity, And Cultural Diversity," Review of Disability Studies I (1) (January 2004), 20-22. Endnotes
2 Taught by Beth Ferri at Teachers College, Columbia University during the spring 2002 semester. Endnotes
2 The distinction between disability and impairment so critical to the social model of disability within DS is not common parlance, where disability and impairment are interchangeable terms. The reader is cautioned here that, in disability studies, disability and impairment are a distinction with a significant difference and that I use the two terms accordingly throughout this article. 3 Thus, disability studies, grounded in the liberal arts, is neither medicine, rehabilitation, special education, physical, occupational, nor any other therapy. Not all practitioners of these professions are necessarily hostile to DS. Notably, the Department of Human Development and Disability at the University of Illinois-Chicago, arguably the nation's leading program, is affiliated with that school's departments of physical and occupational therapy. 4 Nora Ellen Groce, Everyone Here Spoke Sign Language: Hereditary Deafness on Martha's Vineyard. (Cambridge: Harvard University Press, 1985). 5 Ingrid Hofmann, a Deaf Ph.D. student in the University of Minnesota's Institute of Child Development, is comfortable with this characterization of who belongs in Deaf Culture, but notes that Deaf identity is hotly contested by the Deaf, with significant reticence about the wholesale categorization of, for example, hearing people fluent in sign language, late-deafened people, and hard of hearing people, as members of the community. Hearing members of Deaf families who are fluent in ASL are generally more accepted than professional interpreters, whose commitment to the community may be questioned. Ms. Hofmann also notes that the term "hearing impaired," not uncommon in DS discourse, is scorned by the Deaf community, which does not regard its auditory state as an impairment. The term Hearing is also sometimes capitalized in Deaf discourse when proffering respect, lower case when no respect is intended. DS and Deaf Culture points of view regarding disability and deafness can differ significantly, though this is not always apparent in DS scholarship. See Mairian Corker, "Deaf Studies and Disability Studies: An Epistemic Con undrum," Disability Studies Quarterly 20(1) (2000): 2-10. Given that the social model that distinguishes between disability and impairment is not common parlance, where the terms are more or less synonymous, Deaf people unfamiliar with the social model are likely to reject the label "disabled," while acknowledging the complexities and challenges of life in a predominantly hearing world. 6 In print, the capitalized Deaf refers to the culture, the lower-case deaf to the auditory state. While these terms are spoken homonyms, they are different symbols in British Sign Language, which British scholar Mairian Corker discusses in "New Disability Discourse, the Principle of Optimization and Social Change," in Disability Discourse (Buckingham, UK: Open University Press, 1999): 200. The distinction occurs but rarely in American Sign Language, whose sign for Deaf, a variant on "deaf," is not well-known. 7 When I taught in Poland in 1999, I was surprised at the frequency with which television personalities, female and male, wore glasses. By contrast, when I showed a class a video of my ensemble, Blended Cultures Orchestra, there was a large collective expression of shock that our vocalist was a woman of substantial girth. Upon learning later that one of Poland's leading jazz singers was also a large woman, I was informed that she "got away with it" by means of self-deprecation. 8 The gerund form of "to music" that grounds music as activity rather than object, as used by Christopher Small in Musicking: The Meanings of Performing and Listening (Hanover, NH: Wesleyan University Press, 1998) 9 I in no way exclude the eventuality that lessons of DS for ethnomusicology might apply to situations beyond disability and impairment. In particular, DS's use of medical, legal, and industrial relations sources--my own is a case in point--has broad implications. 10 Post-mortem psychological (and medical) autopsies of Mozart are common and varied. It is important to note here that it is the perception of an impairment rather than impairment per se that disables a subject, a distinction noted in the Americans with Disabilities Act of 1990, Public Law 101-336, 104 Stat. 328 42 U.S.C. 12101-12213 (ADA). A July 29, 2001 Internet search for "personality disorders" and "Mozart" yielded 139 hits. For a remarkably well-documented psychobiological case history of Mozart that relies on contemporaneous sources, see Benjamin Simkin, "Was PANDAS Associated with Mozart's Personality Idiosyncrasies?" Medical Problems of Performing Artists 14 (3) (1999): 113-116. Although the film and play Amadeus make no attempt at explicit diagnosis - and impairments are generally rendered rather than named in disability-themed films - they certainly characterize Mozart as a person whose social and life skills are seriously compromised. 11 In the last two decades, most films about classical music have included prominent characters whose disabilities are central plot concerns. In fall 2001, I taught a course entitled Beyond Silence: Classical Music, Disability, and Film. Interestingly, the most honest renderings of disability tend to emerge from those films which make least claim upon a status of "non-fiction." 12 I have three degrees in composition and have been a professor of music for 23 years. Besides my appointment at the University of Minnesota, I have been a guest lecturer and visiting artist/scholar in Europe, Asia, South America, Canada and throughout the United States. Dr. Shiraishi has degrees in composition, arts administration, and music therapy, and is an accomplished performer, teacher, and composer of taiko. Earlier in her career, she managed Greater Twin Cities Youth Symphonies, the largest organization of its kind, and was House Manager for Hancher Auditorium, the large performance hall of the University of Iowa and that state's premier performance space. We attended universities in Illinois, Iowa, Hawaii, and Minnesota. Ideally, data on student musicians with disabilities will employ a large sample from a wide variety of institutions. As a means for demonstrating theoretical principles, using one's "clients" has many precedents, particularly in medical research, including that done on music-related injuries. While physicians keep more comprehensive records of their patients than are presented here, in our experience the presence of any music student with a disability is remarkable enough that what little information needs to be drawn from recollection can be remembered. 13 I exclude here the numerous musicians with performance injuries (a subject treated later in this article) and clinical depression, the former well-documented, the latter, at least in my experience, a quite common occupational hazard. Conversations with students and colleagues suggest depression is often situational and induced through the stresses of a music career. There is of course no way to determine the number of cases of invisible disabilities unless they are identified. Performance injuries in music frequently go unmentioned for fear of reprisals. Other than depression, self-identification of students' disabilities has rarely occurred in my experience, although the recent and welcome movement towards including "disability statements" in syllabuses is intended to encourage students to self-identify (confidentially) to their instructors when they seek accommodation. Neither performance injuries nor situational depression are typically regarded as impairments that qualify for accommodation under the ADA. 14 This by no means implies there have been no distinguished blind classical musicians. Foremost of these include composer-organists Francesco Landini, Louis Vierne, and Jean Langlais, and Spanish composer-pianist Joaquin Rodrigo. Louis Braille, inventor of the tactile writing system which bears his name, was an accomplished organist. Special mention should be made of the African-American pianist-composer, 'Blind' Tom Bethune (1849-1908), whose remarkable life is chronicled by Geneva Southall in Blind Tom: The Post-Civil War Enslavement of a Black Musical Genius (Minneapolis: Challenge Productions, 1979), The Continuing Enslavement of Blind Tom, the Black Pianist-Composer (Minneapolis: Challenge Productions, 1983), and Blind Tom, the Black Pianist Composer (1849-1908): Continually Enslaved (Lanham: Scarecrow Press, 1999). 15 The Americans with Disabilities Act of 1990 states that an accommodation must be "reasonable," a modifier whose interpretation, in my experience, all too often functions as an escape clause and whose implementation is all too often to deny needed services. Yüklə 0,98 Mb. Dostları ilə paylaş:
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