Livelihood explaratory field mission report livelihood Manilla, philippines duration

2.2.4 Responsible government agencies and corresponding support programs

Among the government agencies that directly mandated to support the inclusion of Pwds in the economic mainstream society are :

• 
  DOH, Department of Health
  
• 
  DOLE, Department of Labour and Employment : Support services to Pwds, which include skills mapping, skills training, wage employment and self employment
  
• 
  DTI, Department of Trade and Industry: “Assistance Package for PwDS” (skills, livelihood training…)
  
• 
  DepEd, Department of Education,
  
• 
  DSWD, Department of Social Welfare and Development and NCWDP
  

2.2.5 Disability movement

There are 2 main national networks:

AKAP-PINOY (ALYANSA NG MAY KAPANSANANG PINOY)

370 member organizations nationwide

G/F Mabini Hall, PVAO Comp.

Camp Aguinaldo, Quezon City

Tel/fax:         [phone]

Text:             [phone]

                     [phone]

President: Capt. Oscar Taleon
The role of persons with disabilities themselves is a crucial factor in bringing about equalization of opportunities and improved quality of life. They should be aware of their own situation within the community and to act as advocates to ensure their full participation and integration in development.
The existence of discrimination and the consequent denial of equal opportunities for self-development and full participation are brought about by inadequate positive and realistic information about what PWDs can do and can be. In other words, there is still a serious inadequacy of public awareness. The negative stereotyping against the PWDs persists because advocacy movements in the past and at present have been wanting.
The many years even decades of struggles participated in by the PWD leaders for the sector collectively produced comprehensive programs and projects for advocacy. The lessons from the past, the perception of the realities of today merged by the positive outlook of the future, encouraged the leadership and allies of the Filipinos with disabilities to respond to the challenges confronting them. With the irreversible momentum towards unity among the leaders of 35 major PWD organizations of the different disability groups, the imperative to develop a long-term sustainable advocacy movement has been formulated - hence the Alyansa ng may Kapansanang Pinoy (AKAP-Pinoy), Inc. was organized.
AKAP-Pinoy has been formed to continue the advocacy started by AKAPIN, the official party-list party of PWDs recognized as a political representative organization of PWD sector in the country.
Organized as a federal group in May 2004, AKAP-Pinoy was registered with the Securities and Exchange Commission on October 20, 2004, with Registration No. CN200416714. It is the vision of AKAP-Pinoy that every Filipino with disability will be united and enjoys equality, full participation and improved quality of life.

KAMPI (KAPISANAN NG MGA MAY KAPANSANAN)

250 member organizations nationwide

Unit 701 Merchant Square

E. Rodriguez cor. Mabolo St.

Quezon City

Tel: [phone] or 632-9294409
President: Pete Maño

Main activities:

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  Advocacy
  
• 
  Capacity-building
  
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  Leadership training
  
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  Networking
  

2.3 Demand analyses: Disabilities socio-economic impacts and vulnerability

2.3.1. Situation of Persons with disabilities in urban setting
A visit had been conducted to : 3 persons with disabilities who are clients from the Up Lift MFI, and 2 mothers of disabled children who are clients of a MFIs during the visit of Space. Information collected can not give a trend of the situation of persons with disabilities and families in Metra Manilla.

But, these persons were facing maning difficulties in managing disabilities issues, especially the mother of disabled child living in a slum (very high level of poverty, stigmatisation, loss of hope, very low social interaction....).

The 3 clients from Up Lift mentionned that before becoming Up lift clients, they were idle and were rejected by MFIs credit officers. Since them, their business had been increasing a lot and are able to take care of themselves and theirs families. (Quotation from Arthuro, a person with disabilities who is a business man and member of a local DPO : “they do not want to give us a chance because of disabilities”.

Major difficulties : approvisionnement

2. 
   Situation of Persons with disabilities in rural setting
   

Field visits had been conducted in Sorsoghon area with the support of IRDF.

Individuals interviews and focus group discussion had been carried out, that is :

• 
  11 persons had been interviewed in the outskirt of Sorsoghon city;
  
• 
  3 persons had been interviewed in Sorsoghon city, in a fisherman community;
  
• 
  3 persons in Bulan district, the Bulan Social District, and a representative of Bulan DPOs, a reprensatative of Bulan Women Group Association;
  
• 
  Focus group in Irosin, 20 participants.
  

Appendixe XXX summarizes the different interviews.

Information from a range of stakeholders including DPOs representatives, and persons with disabilities indicates :

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  Reduced income in the household, (as the breadwinner or spouse or wife is disabled), and so increased poverty (many rely on assistance from the neighbourhood or family support) ;
  
• 
  Woman (with disabilities or the spouse from husband with disabilities) are particularly economically vulnerable as they may have no independent income and often no appropriate skills to find work (waged or self employment);
  
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  Household expenses increase because of the additional burden of medical care….
  
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  Size of the households expands as other family members take over parenting responsibilities from sick or dying parents, and household structure becomes unbalanced. Some cases of grand parents taking care of the abandoned grand children (mainly cerebral palsy cases).
  
• 
  Services not often available and accessible. Lack of financial capacity for the family to access services once available (specialized school for parents with children with disabilities, assistices devices….. );
  
• 
  Main characteristics : lack of access to assistives devices, low level of education and lack of skills for a specific job, very low self esteem and self confidence, suffer from stigma and discrimination.
  
  
  

Cases :

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  Some Fisherman using explosive methods to fish. Accidents regularly happened, with main results : amputations, earing problems.... In the fisherman communities, every year accidents occurs. Main consequences : the fisherman had to change work.
  

Difficult to get figures about the number of affected communities.

Prevention activities had been developped by IRDF, especially within their program on management of local ressources.

2. 
   Situation of diabetics patients in Davao City, Mindanao Island
   

PARTIE A COMPLETER PAR CLAIRE
METTRE AUSSI EN ANNEXE LE QUESTIONNAIRE UTILIS2
Information Rapport d’Estelle
Les diabétiques eux-mêmes expriment ce problème, expliquant que la longue distance les séparant de l’hôpital tertiaire où se passent les consultations et l’éducation, ne leur permettent pas de payer le trajet régulièrement.

- Les médicaments et les examens de laboratoire ne sont pas accessibles géographiquement et financièrement pour tous, l’observance du traitement est difficile à suivre. Même si un système social de prise en charge économique des indigents existe, autant les professionnels que les diabétiques sont unanimes à ce sujet. Ce problème est un des obstacles majeurs au contrôle de la maladie par le diabétique. Grâce à une première analyse causale, les professionnels et les diabétiques ont proposé quelques solutions :

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  Vérifier la qualité des médicaments génériques, et en informer les patients (tous pensent que les génériques viennent de la contrebande et préfère acheter des médicaments de spécialité 2 à 4 fois plus chers.)
  
• 
  Proposer une éducation du patient à ce sujet pour lui permettre de choisir ses priorités dans son budget mensuel. (« Ne se sentant pas malades, certains préfèrent garder l’argent pour la bière plutôt que pour les médicaments. »)
  

2. 
   Main conclusion